Since receiving my diagnosis, I have been desperate for information. Spinal cord tumors are rare, so there are not a lot of people to turn to for first hand information. Fortunately, I found the Facebook page of the Spinal Cord Tumor Association. This is an active group of around 2,000 supportive survivors and caregivers.
While some of the stories that people share scare me to death, I have also found some inspiration and solid advice. Right now that is what I need more than anything else.