Last week I had my initial consultation with a doctor at MD Anderson. I just logged in to see how much they are charging me for a consultation and MRI scans of my CNS, and I was shocked to see that there are more than $20k in charges on my account. I have good insurance, and I am hoping most of that is covered, but I can’t help wondering what I would do if it were not covered. That is a lot of money!
Then I begin to think about people who are not fortunate enough to have health insurance. If I were to lose my job and the health insurance that comes with it, there is no way I could pay that much money! And this is just the beginning! I still have the surgery, which could add $80-90k to my bill, and suddenly we are talking about approximately $100k in medical bills. Even if every penny of my take-home salary went towards the bill, it would take me more than two years to pay it off! But I can’t put 100% of my salary into it because I have to pay my other bills. Where does that leave me? Watching the current health care debate very carefully!
What’s Next For The Affordable Care Act? Julie Rover, chief Washington Correspondent for Kaiser Health News, talks about the state of health care in the U.S. today, and how it could move forward. Read more on NPR
via NPR News: What’s Next For The Affordable Care Act? — William Chasterson
Check this out to get some information: https://www.kff.org/uninsured/fact-sheet/key-facts-about-the-uninsured-population/
I’m gonna swing from the chandelier
From the chandelier
I’m gonna live like tomorrow doesn’t exist
Like it doesn’t exist
I’m gonna fly like a bird through the night
Feel my tears as they dry
Here is a list of questions that I am compiling in preparation for my first consultation with my neurosurgeon.
- What type of tumor do I have?
- I’ve been told the tumor is probably benign, do you agree?
- What is the natural course of my condition if not addressed?
- What are my treatment options?
- What are the treatment goals?
- Do I need additional tests before we can decide on treatment options?
- Which treatment option do you recommend?
- Will the treatment eliminate the current symptoms?
- What are the risks/side effects?
- What are the pros/cons of beginning treatment sooner rather than waiting?
- What should I do to prepare for treatment? Can I continue my current exercise routine? Should I add/subtract anything?
- How long will the treatment/recovery take?
- How long is the hospital stay?
- How long will I be out of work?
- If I need surgery, do you perform the whole procedure? Will students/other surgeons be doing any parts of the operation? If yes, who are they and what are their qualifications?
- Who else will assist you in the operation? What are their background and qualifications?
- How long would I need to stay in Houston?
- What is the success rate for this treatment?
- What is the long-term outlook/prognosis for my condition?
- What type of follow-up will I need after treatment?
- I am thinking about going for a second opinion. Is there someone there you would recommend?
- Can I talk to any other patients who have undergone similar treatment?
If I do need surgery:
- What kind of pain should I expect post-op? And for how long?
- How long will I be in the hospital?
- Will I need to have inpatient PT/rehab following the surgery? If yes, for how long?
- Will I be able to get adequate PT follow up when I get back home?
- Will I need any special equipment after surgery (i.e. a back brace, a walker)?
- How often will I need to come to Houston for follow-up care after the surgery?
- Do you have any previously existing ties with neurosurgeons/neurologists in my area?
- What will I do (who do I call) if I have problems after I am back home post-surgery?
- What kind of assistance will I need during the recovery period?
- When will I be able to drive?
- If I have surgery to remove the tumor, what is the likelihood that I will develop another one in the future?
Can you think of anything I missed?
Here are some relate links: