This is probably one of the most beautifully hopeful posts I have seen from someone who is sharing their post surgery experiences. Since having my surgery, I have wondered at the number of people posting photos of their scars – proudly, almost defiantly – on the Spinal Cord Tumor Association Facebook page. I have even noticed that I have a fascination with my ever evolving scar. I want the world to see it. I want them to know and recognize that I am a warrior. While I spend much of my time and energy trying to live my life as if this tumor didn’t change me, the undeniable truth is that is has changed me. The scar is tangible, outward proof of the changes (emotional, psychological, and physical) that I have experienced in the past six months. And here, in this blog, is a warrior who very eloquently explains what so many of us have felt. Take a minute to read her blog, and keep rocking that scar.

aperture expanding by Kelsey Pfleiderer

When I first started dating my husband Luke, I covered my mouth anytime joy tried to sneak out of the corners of my mouth. This was something I didn’t realize I had learned to do over the years, but it is something Luke caught onto right away. A few weeks into knowing each other, I received the first ever coveted “Goodnight, beautiful.” text from him. My heartbeat quickened and, unknowingly, I covered my shy smile with my left hand. Seconds later, he sent a second text saying,

“Let me guess, you’re covering your gorgeous smile and your green eyes are twinkling. Right?”

What. The. What???

Puzzled as all heck, I glanced around my apartment wondering how in the world he would have known something about me I didn’t even know about myself (also wondering if this incredible, seemingly normal man I had already known would be my husband was somehow…

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Tumors, Tears, and Twix

I promised that I would help you connect to other people who have faced a spinal cord tumor diagnosis, so here is another winner. Her blog is much more personal than mine, and her writing is fresh and fun even when talking about things that are anything but fun. She stopped posting several years ago. I can only hope that is because she is too busy out exploring the world.

A Real Pain in the Neck

I hate giving bad news. Having had training on grief counseling both in military and civilian settings, I am not a stranger to delivering bad news in my life. However, when the not-so-awesome news is about myself, I am really crappy at telling and retelling the story and delivering the information. It is kind of exhausting. Therefore, as I go on this next little adventure, I have decided to set up this website for family, friends, and anyone else who’s damn well interested about the goings-on in my life.

It all began about four years ago. (Don’t worry, I’ll try to make this as brief as possible. I hate long-ass tales of woe.) As I was serving in Kosovo during my Army deployment as a Chaplain Assistant, I began having some bad pain and weird sensations in my right arm and hand. This is very important for a soldier to…

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50/50 – Science Behind the Movie

As you know, since being diagnosed with a spinal cord tumor, I have been trying to gather resources to help others who are dealing with a similar diagnosis. Someone recommended that I watch the movie 50/50, and after completing my own review of the movie 50/50, I found this review that looks at the science behind the movie. I thought it was interesting. So, here is the low down on the science behind the movie.

Cancer on Screen


50/50 is a comedy drama about a 27 year old Adam (Joseph Gordon-Levitt) and his rare diagnosis of Schwannoma neurofibrosarcoma, he is told his prognosis is a 50% chance of survival.

The film has a 7.7 rating on IMDb and was actually based on true events of Will Reiser, the screen writer for the movie who developed cancer in his early twenties. The film addresses  the struggles of having cancer at a young age, the content is lighthearted and humorous in places but also a real tear jerker. Anyone who loves Seth Rogan will love this film!! He plays Adam’s funny best mate.

So lets look, what is Adam’s rare cancer? What is is Schwannoma neurofibrosarcoma? The film does not explain. they simply refer to his cancer as back cancer and make jokes about the funny long name….

To understand a little more about Adam’s cancer we need to know…

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