I thought this would be a good time to reflect on my recovery and to remind myself how far I have come in a relatively short period of time. These are posts from my CaringBridge site. I set it up prior to my surgery to help me communicate with my friends/family. Hope this is of some help to those of you who are just beginning this journey.
Yesterday marked the beginning of week six post-op. Originally my doctor told me I could go back to work six to eight weeks after surgery, but then I had the spinal fluid leak… and plans have changed.
Yesterday I started out-patient physical therapy. Hoping that will help push the recovery along. Although I still have to spend much of my day resting on the sofa, I make a point of doing my exercises. I walk 1-1.5 miles everyday. I still walk slowly and have balance issues, but I am gradually moving from the walker to a cane. That is a big accomplishment after having surgery to remove a tumor from the spinal cord because essentially, the surgery leaves you with some damage to the spinal cord. The surgeon had to sacrifice one of my nerve roots during the surgery, so I also have some issues related to that.
Still, over all, I seem to be making progress each day. The incision is looking better, and all of the stitches have been removed or dissolved. I have good days and bad days, but the good days are frequent enough to keep me from losing hope.
I have also had visits from several of my friends, and that has been wonderful! I hope to be back at work by mid-February. Miss everyone!
Week seven post-op update: Taking baby steps back to normal. After weeks of walking around most days either barefooted or in tennis shoes, today I put on the boots (well, in full disclosure… Jose helped), and I went for my first post-op haircut. I couldn’t get a shampoo because reclining is still not comfortable, but baby steps, right?
Physical therapy is going well. I did six minutes on a stationary bike (very slow and awkward) and I have started some gentle stretching. The gentle massage around the incision is helping to loosen things up, decrease numbness, and retrain my brain to interpret nerve messages correctly. I also got to lay on my stomach for the first time since surgery – that is huge because I am normally a stomach sleeper. Still can only lay like that on a limited basis, but it is progress. Still walking about 1-1.5 miles daily. Working on speed, stability, and endurance. I also need to get my left leg to continue doing what it should on automatic pilot if I am engaged in another activity while walking (I.e. talking to my exercise buddy).
Now I need to work on a plan to get myself back to work before I use up all of my FML. Part of that plan is getting cleared to drive and being able to sit for more than a few minutes at a time. Gotta have goals.
I continue to be amazed by the outpouring of love and support from family and friends near and far! You are amazing!
Week eight post-op report:
Here we are at week eight since the surgery, and I continue to make progress towards a full recovery.
I am able to walk with more speed and fewer visible deficits (I still have balance issues and need to concentrate, but my husband tells me most people wouldn’t be able to tell I was using a walker a few weeks ago). In physical therapy I have progressed from 5 minutes on the stationary bike to 11 – with plans to keep adding one minute each time I have physical therapy. That is part of the plan to get me ready to drive again. We have also added some work with weights (one pound, but you have to start somewhere) to help build up my strength after spending so much time resting while the CSF leak healed.
I still cannot bend, lift or twist, and I am still having pain/discomfort from the surgery, but am no longer on any pain meds other than gabapentin for nerve pain, so that is a good thing! Don’t get me wrong, that doesn’t mean I am no longer in pain, just that I am dealing with it. Thanks to gentle massage, I am gradually getting back some of the feeling that I had lost, and the hypersensitivity is decreasing. The muscle spasms are tiresome, and I hope those start to improve soon. I am taking muscle relaxers for them in addition to incorporating some limited stretching into my routine. I am also ready for the nerve pain to go (especially the pain at the site of the severed nerve root), but that might be here to stay.
My immediate goals include sitting, lying on my back, and lying on my stomach for increasing amounts of time. These are all very uncomfortable for me right now, but I am hoping that by the end of the month, I will see huge improvements as it is time to start transitioning back to the world of work… where I won’t be able to spend several hours a day “working out”. Wish me luck as the next few weeks will be critical.